It’s been one year since Nora was admitted to UNC for what we thought could be, and turned out to be, infantile spasms. Since those first very scary days in the hospital, Nora’s had one heck of a year.
Since our last update, Nora has started walking! She’ll still get some orthotics to help make sure the mechanics are right, but pretty good for a beginner:
She’s also switched her anti-seizure medicine from Topamax to Zonisamide. Topamax may have an impact on word recall, so we’re hoping that this switch will help with her speech development. She started seeing a speech therapist this week as well.
Next Thursday, April 21, will mark one year without seizures for Nora. We’re celebrating by donating to the Child Neurology Foundation - an organization that promotes education, awareness, and provides direct support to families dealing with Infanfile Spasms. Thank you for considering a donation as well.